WE are war's first victims are the patients

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30. may we could read in the Newspaper that members of the ME association goes far to prevent the professionals in to give ME patients treatment that do not comply with the association's sykdomsforståelse. Professionals have been threatened into silence through complaints to helsetilsynet, personal attacks and threatening letter.

We are not against research Debate

That there are members in this association who is tired of not being taken seriously, is not difficult to understand. The diagnosis has long been disputed, but is today accepted as a medical condition.

No biological markers can confirm the diagnosis, and the diagnosis is made usually after the doctor has ruled out other disease. ME is also a serious disease to live with, and leads to a persistent weakening of bodily and cognitive functions that deteriorate the quality of life considerably.

WE-ill stop the research

On the basis of the lack of biological markers to diagnose the disease, as well as variations in patients ' sykdomsbilde, it is common to understand ME in the context of a biopsykososial model. It is conceivable, then, that the disease occurs and continues to occur through an interaction between biological, psychological and social factors.

This understanding has characterized treatment services to patients who do not respond to medications, and a have examined the effects of cognitive therapy and treningsbehandling. Research on treatment effectiveness shows the varying findings, however, suggest that non-medical treatment can be functioning for some.

Turn On the LydErrorAllerede plus customer? Log into herError WORRIED: Physician and professor Vegard Bruun Bratholm Wyller is afraid of ME-the sick are scared away from trying cognitive adferdsterapi, a treatment research shows that can help. Video: Nina Hansen / Sally Førsund Show more

In light of the fact that we, today, know small about ME, but something about what works for some, it is difficult to understand the association's strong opposition to cognitive therapy and research in treating.

The biopsykososiale frame of reference of the disease should be applied to all illness, and there is no apparent reason why WE should be in a unique position here. Psykoterapeutisk treatment are offered in several patient groups with the purpose to ease symptoms and stressbelastning.

WE-the society's resistance against that ME patients should receive such treatment is thus not for the benefit of its client they intend to represent.

the Constant spread of fear Debate

the Methods used to gag the professionals, are effective and destructive. It is scary to be genuinely concerned to give the patients good treatment when a meet with threats of complaints to helsetilsynet and fagetisk advice.

I will never argue against this important right that patients and users of health care in Norway today, but I will warn against the assumption that the dispute resolution system is being misused.

Stories from doctors and psychologists suggests that klagemuligheten may have been used as a sanction against agents who do not share the society's narrow sykdomsforståelse.

It is serious about this would prove to be the case. The consequences can be that the professionals refuse to provide evidence-based treatment, and that patients that could have been better to remain sick.

The casualty is regardless of ME-patients, who require that we dare to bet on the development of knowledge and interdisciplinary treatment when medications do not work.

Professor: So the future ME-the treatment Dagbladet Plus

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